Showing posts with label health. Show all posts
Showing posts with label health. Show all posts

Monday, July 7, 2008

Wonder


Natalie Merchant is one of my favorite singers. I love the song "Wonder". It is the song that plays when you log on here. Laine is one of God's creations and He is good. He makes no mistakes. Another mom that writes a blog I read (and also has a child with a rare genetic disorder) wrote recently, "find joy in the unexpected" ( to see here to go to her post http://lisaleonardonline.com/). I am glad that I am at a point now where I can find joy. With God, I can find the joy in the unexpected. Laine is "gifted with love and with faith she will make her way". My prayer is that Laine's way will be God's way and His word will light her path. With God all things are possible little Laine. Here are the words to the song




WONDER


"Doctors have come from distant cities


just to see me stand over my bed


disbelieving what they're seeing


they say I must be one of the wonders of god's own creation


and as far as they see they can offer no explanation


newspapers ask intimate questions want confessions


they reach into my head to steal the glory of my story they say


I must be one of the wonders of god's own creation


and as far as they see they can offer no explanation


I believe fate smiled and destiny laughed


as she came to my cradle "know this child will be able"


laughed as my body she lifted


"know this child will be gifted with love, with patience and with faith she'll make her way" people see me I'm a challenge to your balance


I'm over your heads how I confound you and astound you to know


I must be one of the wonders of god's own creation


and as far as you see you can offer me no explanation


I believe fate smiled and destiny laughed


as she came to my cradle "know this child will be able"


laughed as she came to my mother "know this child will not suffer"


laughed as my body she lifted "know this child will be gifted with love, with patience and with faith she'll make her way"

Sunday, June 29, 2008

Look how far we've come!




Searching though old pictures is fun and I found this one of Laine. It reminded me of how far she has come with the healing of the Strawberry Hemangioma that developed after birth. This picture was taken about 2 months after it stopped growing so this isn't when it was at the largest, but, it gives you an idea from when she was 10 months old to now about 2 1/2 years. We are hopeful in the next few years she will continue to heal better. She may need some plastic surgery in a couple years but our doctors are hopeful that it will get better with more time. We have seen Dermatology, Hematology and Opthalmalogy at U of M and all are pleased with the progress. We see all the doctors again later this summer for check ups. We'll keep you posted! She also returns to her Genetic/Metabolic doctors later this summer and we are pleased with Laine's progress and health and hope they are too. She has only had one hospital stay this last winter for the year so far. We are hopeful for no more stays this year. We give God the glory for meeting our needs and answering our prayers. During the first few weeks after she was born and we were faced with her Metabolic condition and the growing Hemangioma, needless to say that I was one stressed momma. I would have never guessed our lives would return to our "normal" that it is today (although it was my prayer). I am reminded to ask by prayer and petition our desires and God is good and faithful.