Simple Things Mean So Much: first day...

Tuesday, September 8, 2009

first day...

of third grade...i am excited for you today paige...i look forward to all you will learn and all you have to offer. friendship, knowledge, skills, fun, maturity. good luck today dear one. i will miss you. love mom

1 comment:

purejoy said...: wow first day?? our guys have been back since august 11. they're practically ready for midterms!!

she is beautiful and i hope she doesn't get any nasty mean girl splashed on her this year.

i hate mean girl and i hope she can be surrounded by sweet girl all the days of her life!; September 8, 2009 at 12:00 PM

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To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Tuesday, September 8, 2009

first day...

1 comment:

Welcome

Paige and cousin Avery