Simple Things Mean So Much: me and the girls

Wednesday, March 23, 2011

me and the girls

2 comments:

purejoy said...: what fun pictures. they're really growing up! :*(
too fast!!
hope y'all are having a super spring!; March 23, 2011 at 6:11 PM
JenD said...: i know! paige will be in middle school this next year....I am so not ready....; March 23, 2011 at 9:26 PM

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Wednesday, March 23, 2011

me and the girls

2 comments:

Welcome

Paige and cousin Avery