Simple Things Mean So Much: we are off...

Monday, April 6, 2009

we are off...

this morning we leave for a week to the most magical place....with my prince charming and my princesses.

4 comments:

purejoy said...: hope you have a fantabulous time!!; April 6, 2009 at 10:48 AM
Sara said...: Have a magically fantastic time! I can't wait to hear all about it and see pictures!

Sara; April 6, 2009 at 6:52 PM
Anonymous said...: Hi sis! I hope the you guys and the girls are having a SUPER time. Ahhh I love the magic of Disney!!!!!; April 7, 2009 at 4:57 PM
Amber said...: Just wanted to let you know that you won the giveaway over on my blog - amberscurlock.blogspot.com! Email me and let me know your address so I can send your goodie pack to you!! Thanks! Amber; April 9, 2009 at 8:53 AM

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Monday, April 6, 2009

we are off...

4 comments:

Welcome

Paige and cousin Avery