Simple Things Mean So Much: swing to the stars

Wednesday, June 17, 2009

swing to the stars

2 comments:

purejoy said...: are you kidding me?? every day the photo is better than the last!! what a treat it's been to visit you!; June 17, 2009 at 9:31 PM
Sara said...: Wow, Jen! Awesome photos! It looks like you are making some wonderful memories for the girls. That warms my heart.; June 18, 2009 at 12:49 AM

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Wednesday, June 17, 2009

swing to the stars

2 comments:

Welcome

Paige and cousin Avery