Simple Things Mean So Much: just counting the days until.....

Saturday, March 28, 2009

just counting the days until.....

Disney

3 comments:

Karen said...: Have a fun and safe vacation!
Love, Maddie and Sara's Aunt Karen; March 28, 2009 at 10:46 PM
Amber said...: Love those little sparkles all over the pictures...enjoy Disney! =); March 30, 2009 at 3:08 PM
purejoy said...: why do you need to go to disney!!?? you have your own little princess right in your own home!! she is adorable and the added bling is precious!; March 31, 2009 at 9:17 AM

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Saturday, March 28, 2009

just counting the days until.....

3 comments:

Welcome

Paige and cousin Avery