Simple Things Mean So Much: summer fun

Monday, August 10, 2009

summer fun

1 comment:

purejoy said...: love their shirts!! what an adorable photo!!
ps i had jam in my steel cut oats this morning (i probably already told you. sorry it's been a loooooooong day!) and it was DEE lish!! thanks again for the special blessing!; August 10, 2009 at 10:09 PM

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Monday, August 10, 2009

summer fun

1 comment:

Welcome

Paige and cousin Avery