Simple Things Mean So Much: blizzard 09

Friday, December 11, 2009

blizzard 09

back to school today...lots of snow at least 8-10 inches here between wednesday and thursday. paige is better from her virus and laine has stayed healthy...fun in the snow on a beautiful day...

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To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Friday, December 11, 2009

blizzard 09

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Welcome

Paige and cousin Avery