Simple Things Mean So Much: my sweeties

Wednesday, January 21, 2009

my sweeties

2 comments:

Sara said...: You are really putting me to scrapbooking shame, Jen! Wow! These are GREAT layouts! I am loving them. Thanks for sharing.

Oh, and lovely letter to your daughters. I loved it.

Sara; January 21, 2009 at 10:59 PM
Charisse said...: Your scrapbook pages are beautiful. Your girls are so sweet, loved your letter to them.; January 23, 2009 at 5:07 PM

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Wednesday, January 21, 2009

my sweeties

2 comments:

Welcome

Paige and cousin Avery