Simple Things Mean So Much: year of the scarf

Have you heard about the Year of the Scarf Bloggy carnival on March 2? Well it is the year to go from ordinary to extraordinary with a simple scarf. Over at Unexpected Blessing she came up with the idea. Get yourself an amazing scarf and take and pic and upload to you blog or website on March 2. The details are at her website. Come on and join me it will be fun.

P.S. Walmart has really cute ones for 5 bucks. Just like the one I have on and it lots of cool colors.

To Learn about Laine's VLCAD status

Laine was diagnosed with a rare genetic disorder called VLCAD. It is a Fatty Acid Oxidation disorder that was picked up through Expanded Newborn Screening at birth. It is a noncurable yet treatable disorder. When she is sick her body can become metabolically challenged and she usually has to go to the hospital for high sugar IV fluids and lab work. The first year she was admitted 3 times but the last 2 years she has only been admitted once each year. If left untreated babies can have heart, liver and other problems. UPDATE...She had additional testing this last summer and now the doctors have confirmed she is a carrier. We believe she has been healed. God has been so good to us. She also had 2 Strawberry Hemangiomas (Benign Vascular tumors) that grew rapidly during the first year and may need plastic surgery someday but they are healing amazingly well. We thank God for her and all he has done. For more info about VLCAD go to www.FODsupport.org/

Simple Things Mean So Much

Saturday, February 7, 2009

year of the scarf

2 comments:

Welcome

Paige and cousin Avery